I just made all of my appointments with the high risk OB department at MUSC. At my last regular Ob appointment I was diagnosed with gestational diabetes so now I have to see a dietician in addition to everything else going on. At least it is something manageable that I can control. Next week I will have a follow-up ultrasound so we can see what organs are in her chest cavity right now. Hopefully nothing else has moved up and she still has a moderate defect. That in addition to me taking care of myself to keep her in as close to her due date as possible is going to help give her the best chance.
As it stands right now we are getting mentally prepared for the struggles that Lily will face and the pain in watching her struggle and having no control or ability to take her struggles from her. I am encouraged by the success stories that I have been hearing including that of our own nephew and am trying my hardest to avoid anything negative. Please if you can keep us and our daughter in your prayers.
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